Topic: The importance of staying active throughout childhood, the teen years, and beyond. Also, the value of eating healthy high fats. Date: Thursday, January 10, 2019 Guest Speakers: Brooke Guthrie 20 year old, junior at High Point University Part-time Physical Therapy Technician, Personal Trainer at HPU Also happens to have CF Rebecca Byrd, PT, DPT, CCS Duke University Health System Cardiopulmonary Rehabilitation Recording of workshop available:
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CF Foundation: COMPASS A personalized service to help you with the insurance, financial, legal, and other issues you are facing. It's free, confidential and available to everyone. LEARN MORE: www.cff.org/Assistance-Services/About-Compass/What-Is-Compass DATE: Thursday, September 6, 2018 GUEST SPEAKERS: Azi Kaider CFF Compass Assistant Director, Policy and Advocacy Aaron Stokes Case Manager (Adult with CF) CFF Compass TOPIC:
CF Pharmacy Assistance Programs & Resources Medication Action Plans: Improving Adherence and Encouraging Medication Independence DATE: Tuesday, June 26, 2018 GUEST SPEAKERS: Cameron J. McKinzie, PharmD UNC Chapel Hill Tara Bell, PharmD Duke Clinical Pharmacist Practitioners, Pediatric Pulmonology TOPIC:
CF Nutrition from A to Zinc DATE: Monday, April 23, 2018 GUEST SPEAKERS: Kimberly Stephenson, MS, RD, CSP UNC Pediatric Dietitian Kelly Baumberger, RD, CSP UNC Pediatric Dietitian Vanessa Yount, RD, LDN Duke Pediatric Dietitian Rebecca Gregory, MS, RD, LDN Duke Adult Dietitian EVENT RESOURCES: TOPIC: Motivational Interviewing Parent Tips 101: Motivating kids with CF to take on more responsibility with their care as they get older can sometimes feel like an uphill battle. Motivational interviewing is a style of communication that has been shown to facilitate behavior change and improve medication adherence in a supportive and empathic manner. DATE: Wednesday, February 28, 2018 GUEST SPEAKER: Nadia Islam, PhD, Psychology Fellow at UNC Audio recording of this workshop is available below: TOPIC:
Research Highlights from the 2018 North American Cystic Fibrosis Conference DATE: Wednesday, December 13, 2017 GUEST SPEAKER: Scott H. Donaldson, MD, Director, UNC Adult CF Center *Recording of this workshop is not available TOPIC:
Respiratory Tips (nebulizer cleaning tips, questions regarding airway clearance devices, Vests, etc.) DATE: Wednesday, October 11, 2017 GUEST SPEAKERS: Delly Garcia, Respiratory Therapist Ronnie Reynolds, Respiratory Therapist *Recording of workshop not available TOPIC:
An informal evening discussion led by our fabulous UNC CF nurses DATE: Wednesday, August 9, 2017 SPEAKERS: Jennifer Leandro, RN CF Clinic Nurse Martha Taylor, RN CF Clinic Nurse Sheree Berckmans, RN CF Clinic Nurse Ashley Austin, RN, BSN, CPN Recording of event available. Please click button below to be redirected to the event recording. ARCHIVED EVENT
DATE: Wednesday, June 7, 2017 TOPIC: School Considerations (504 plans, home bound schooling and school during hospitalization) and Child Life Services (addressing procedure anxiety, Child Life support/services in the clinic and during hospitalization) Guest Speakers: Karen Weatherly, Hospital School Teacher UNC Hospital Jordan Hulliger, LRT/CTRS Child Life Specialist UNC Hospital *No notes or recordings available from this workshop ARCHIVED EVENT
TOPIC: The Transition to College – Perspectives from a young adult with Cystic Fibrosis DATE: Wednesday, April 5, 2017 GUEST SPEAKERS: Magnolia Long, Adult with CF *No notes or recordings available from this workshop. |
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