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Our CF education workshops are in partnership with Bright Beginnings: a program for parents of newly diagnosed children with CF. Guest speaker, Lisa Greene, parent and Certified Family Life Educator, presented on "coping with the emotional rollercoaster". There will be times when you need to speak up for your child's rights or care needs. It can be difficult to challenge what medical professionals are telling you. This workshop focused on learning a process for developing an advocacy plan and develop skills in speaking up for your child and family. Review the slides from the workshop below:
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Our CF education workshops are in partnership with Bright Beginnings: a program for parents of newly diagnosed children with CF. Guest speaker, Lisa Greene, parent and Certified Family Life Educator, presented on "coping with the emotional rollercoaster". The emotions of dealing with CF have been described as being on an "emotional rollercoaster." Learning how to accept and cope with the ups and downs of life with CF as early as possible will help you build resilience. This workshop helped participants explore wellness & self-care strategies to nurture their resilience, as well as identify ways to cope with difficult feelings and stress.
Review the slides below for help coping with the emotion rollercoaster: Our CF education workshops are in partnership with Bright Beginnings: a program for parents of newly diagnosed children with CF. Guest speaker, Lisa Greene, parent and Certified Family Life Educator, presented on "telling your CF story". As you begin your CF journey, you may receive questions from family, friends, and other about what you are going through. It's important to have a plan about what you want to share. This workshop helps you to reflect on your story about your child's birth and diagnosis, and decide who, how, and when to tell others your story. When thinking about "Sharing Your Story", consider:
Review the slides below for help telling your CF story!  This complete session is available in Module 2 of the Bright Beginnings program. Bright Beginnings is a free program for parents and caregivers of newly diagnosed children with cystic fibrosis. If you'd like to explore the program, please click the link below to get started.
Our recent workshop was in partnership with Bright Beginnings: a program for parents of newly diagnosed children with CF. Guest speaker, Lisa Greene, facilitated discussion and presented on resilience. Some key discussion points include:
Click the button below to download slides from the workshop. If you would like to participate in the live discussion, be sure to register for our next workshop in January.
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