Continuing Education Workshops

Every other month, we provide CF Education Workshops to Cystic Fibrosis parents, caregivers, and individuals living with CF. Our various topics all pertain to current CF research and technology, so CF families can stay in-the-know on current therapies, resources, and opportunities available.

Based in Raleigh, NC, our workshops have been held on location of our very generous sponsor, Impact Pharma, in a conference/dinner setting. During this time of COVID-19, all our meetings are virtual.

While we miss meeting together in person, content is relevant to all CF parents regardless of your location. Virtual attendees are always welcome.

To participate in an upcoming workshop. please click here to register and we will provide ZOOM login information after you RSVP.

We look forward to connecting with you!

U P C O M I N G   W O R K S H O P

The Importance of Mental Health when Living with a Chronic Disease

Thursday, June 15, 2023
7:00 - 8:30pm (EST)
This workshop will discuss the importance of mental health and how the entire family can be affected when you are dealing with CF. Learn how parents can help their children with mental health, as well as what signs to look for in themselves.
LIVE Virtual Event  •  Please register for ZOOM Login Information
Guest Presenter:
Elizabeth Jorgensen, MSW, LCSW
Levine Children’s Specialty Center
Elizabeth Jorgensen currently works as a clinical social worker with Atrium Health Levine Children's Cystic Fibrosis program. Since starting as the CF social worker in 2015 she has started a Family Advisory Board, implemented mental health screening, and helped organize many educational events. Elizabeth obtained her LCSW in May 2018. During the summer of 2020 during the global pandemic she along with the Atrium Health CF psychologist started a virtual support group for CF teens.

Recent Workshops

Legal Rights of Children and Adults with CF

April 2023
Information on how a child or adult becomes eligible for Social Security monthly payments. Review the right of children with CF in education and the rights of adults and parents in employment, as well as ways to access health insurance coverage.

Insurance 101: Basics for People with CF

February 2023
Presented by CFF Compass. Overview of health insurance terms, types of coverage, timelines for enrollment, plus tips for managing your insurance and understanding medical bills.

NACFC 2022 Research Highlights

December 2022
Hear the latest research and developments from the 2022 North American Cystic Fibrosis Conference (NACFC).