Your CF Story: How to Talk About CF
January 2025 When you are new to the CF journey, you will receive many questions from family, friend, and other about what you are going through. It's important to have a plan about what you want to share. This workshop helps you reflect on your story and decide who, how, and when to tell others about your child's diagnosis. |
Newly Diagnosed with CF
October 2024 An overview and deeper dive into topics for parents and caregivers of those newly diagnosed with CF (discussion geared for age 3 and younger) |
NACFC 2023 Research & Highlights
November 2023 Listen to the latest research from the 2023 North American Cystic Fibrosis Conference (NACFC), presented by Dr. Charles Esther of UNC Chapel Hill Children's Research Institute |