Continuing Education Workshops
Every other month, we provide CF Education Workshops to Cystic Fibrosis parents, caregivers, and individuals living with CF. Our various topics all pertain to current CF research and technology, so CF families can stay in-the-know on current therapies, resources, and opportunities available.
Based in Raleigh, NC since 2016, our workshops have been held on location of our very generous sponsor, Impact Pharma, in a conference/dinner setting. All our meetings are currently virtual and available to all CF Parents/Caregivers regardless of your location. To participate in an upcoming workshop. please click here to register and we will provide ZOOM login information after you RSVP. We look forward to connecting with you! |
Connect with a CF Peer for Support
September 2023 CF Peer Connect is a one-to-one peer support program for people with CF and their family members ages 16 and older. No matter your age or stage in life, you can connect with someone who has been through a similar situation to share stories and learn from each other. Learn how to take the step to connect with a peer and get the support you need. |
The Importance of Mental Health When Living With a Chronic Disease
June 2023 Discuss the importance of mental health and how the entire family can be affected when you are dealing with CF. Learn how to help your children with mental health, as well as what signs to look for in yourself! |
Legal Rights of Children and Adults with CF
April 2023 Information on how a child or adult becomes eligible for Social Security monthly payments. Review the right of children with CF in education and the rights of adults and parents in employment, as well as ways to access health insurance coverage. |