Managing Practical MattersFocus on the practical things required to manage family life with CF. Discover tips for managing time, storing medication, record keeping, and getting organized, so you have more time to focus on your family and yourself. In this workshop, you will learn how to increase balance in your life, improve your quality of life, and become more efficient with your time and energy
Sunday, November 16, 2025
6:30pm ET | 5:30pm CT | 4:30pm MT | 3:30pm PT |
Speaking Up and Asserting Your ExpertiseSeptember 2025 There will be times when you need to speak up for your child's rights or care needs. It can be difficult to challenge what medical professionals are telling you. This workshop teaches a process for developing an advocacy plan and develop skills in speaking up for your child and family. |
Coping with the Emotional Rollercoaster
March 2025 The emotions of dealing with CF have been described as being on an "emotional rollercoaster." Learning how to accept and cope with the ups and downs of life with CF as early as possible will help you build resilience. |
Your CF Story: How to Talk About CF
January 2025 When you are new to the CF journey, you will receive many questions from family, friend, and other about what you are going through. It's important to have a plan about what you want to share. This workshop helps you reflect on your story and decide who, how, and when to tell others about your child's diagnosis. |