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Our Story
"Cystic Fibrosis Parent Education" was co-founded by CF Parents: Timothy and Jennifer Webber of Raleigh, NC. As parents of two daughters with CF, and having themselves benefited from material shared by other parents of children with CF, the Webbers wanted to help other parents navigate CF by providing continuing education workshops to those impacted by the disease.
Workshops have been held bi-monthly in the Triangle area of North Carolina since December 2016. Topics have varied from attending college with CF, to current CF research, to nutrition tips! For individuals and families unable to commute to the Triangle Area, virtual options are available. (Due to COVID-19, all events are currently virtual). Our events are made possible through the support of the CF Foundation's Community Impact Grant, and our corporate sponsor, Impact Pharma, who hosts our in-person meetings. We are also grateful for the support of the UNC Chapel Hill CF Care Center, the Duke CF Care Center, and to the countless others who share their knowledge and advice about caring for those with CF to make our workshops possible. Thank you for your support. |
Educate
Our no-fee workshops provide in-person and virtual networking, learning and engagement opportunities with other CF caregivers and guest speakers. Topics over the years have included: nutrition, school considerations, medical adherence, insurance, legal and financial action plans, research updates, and the value of health eating habits.
Empower
Navigating CF can be overwhelming. Our workshops help CF parents, patients and caregivers stay current with research and technology, and encourage collaboration to empower the caregiver. Take the step to connect with us and join us for our next CF Education Workshop.
Collaborate
Take the step to connect with us and join us for our next CF Education Workshop.
Sponsors
We have been providing workshops to North Carolina families since 2016. We have received support from the Cystic Fibrosis Foundation through their community impact and support grants. Our in-person events are generously hosted in the RTP region by Impact Pharma. Due to COVID-19, all events are currently virtual.
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