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The Importance of Mental Health When Living With a Chronic Disease This workshop discusses the importance of mental health and how the entire family can be affected when you are dealing with CF. Learn how parents can help their children with mental health, as well as what signs to look for in themselves. Scroll below video for links to resources and slides! WORKSHOP DATE: Thursday, June 15, 2023 GUEST PRESENTER: Presented by Elizabeth Jorgensen, MSM, LCSW CF Social Worker Atrium Health Levine Children's CF Center Elizabeth Jorgensen currently works as a clinical social worker with Atrium Health Levine Children's Cystic Fibrosis program. Since starting as the CF social worker in 2015 she has started a Family Advisory Board, implemented mental health screening, and helped organize many educational events. Elizabeth obtained her LCSW in May 2018. During the summer of 2020 during the global pandemic she along with the Atrium Health CF psychologist started a virtual support group for CF teens. Watch Workshop Recording HANDOUTS click image to download pdf
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TOPIC: Surviving Clinic Visits and Medical Procedures: Tips from a Child Life Specialist WORKSHOP DATE: Thursday, October 6, 2022 GUEST PRESENTER: Jordan Hulliger, CCLS Watch the presentation and Q&A with a Child Life Specialist. Discover tips and suggestions on how to make clinic visits and medical procedures a little easier for both children and parents! Recording of Workshop Available Below: TOPIC: Mental Health: Recognizing the Needs of Caregivers and Those with CF WORKSHOP DATE: Thursday, June 2, 2022 Virtual Event GUEST PRESENTER: Mary Beth Prieur, Ph.D. Clinical Psychology - UNC Amy Sangria, MSW, LCSW - UNC Ellen Penta, LCSW, LCAS-A - UNC UNC Clinical Psychologist and CF Social Workers discuss the very important topic of Mental Health. Recording of Workshop Available Below: TOPIC: Gastroenterology (GI) Issues & Complications in CF It's not all about the lung! WORKSHOP DATE: Thursday, April 28, 2022 Virtual Event GUEST PRESENTER: Dr. Dhiren Patel Pediatric Gastroenterology Specialist SSM Health Cardinal Glennon Children's Hospital, St. Louis, Missouri Recording of Workshop Available Below: CLICK HERE to download the research paper demonstrating safety of Miralax.
TOPIC: Get the Respiratory Rundown with Duke University Respiratory Therapists. Presentation features useful information on therapies, devices, cleaning, and exercise/therapy. Including info on treatments while on Trikafta. DATE: Thursday, February 24, 2022 GUEST SPEAKERS: John Davidson & Kathe Neeley Duke University Respiratory Therapists Recording of Workshop Available Below: Product Information The below products were referenced in the workshop. Click the image for more information on the manufacturers website.
TOPIC: Scholarships, Grants & Other Benefits for People with CF DATE: Thursday, October 7, 2021 GUEST SPEAKERS: Laura Bonnell Founder of the Bonnel Foundation thebonnellfoundation.org & Ellen Pentra UNC Social Worker & Kimberly Houston RN, MSN, CPNP and...CF Mom Discover opportunities available to your child with CF. Our guest speakers will highlight local and national programs available for people with CF. We also invite parents of older children to join the meeting and share personal experiences. Scroll down below the video to links to resources! Recording of Workshop Available Below: *Scroll below video to download slides from presentation!
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