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Past Workshops & Posts by CF Parents

Mental Health: Recognizing the Needs of Caregivers and Those with CF

6/26/2022

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TOPIC:
Mental Health: Recognizing the Needs of Caregivers and Those with CF

WORKSHOP DATE:
Thursday, June 2, 2022
Virtual Event

GUEST PRESENTER:
Mary Beth Prieur, Ph.D. Clinical Psychology - UNC
Amy Sangria, MSW, LCSW - UNC
Ellen Penta, LCSW, LCAS-A - UNC

UNC Clinical Psychologist and CF Social Workers discuss the very important topic of Mental Health.


Recording of Workshop Available Below:

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Scholarships, Grants & Other Benefits for People with CF

10/9/2021

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TOPIC:
Scholarships, Grants & Other Benefits for People with CF

DATE:
Thursday, October 7, 2021

GUEST SPEAKERS:
Laura Bonnell
Founder of the Bonnel Foundation
thebonnellfoundation.org

&
Ellen Pentra
UNC Social Worker
& 
Kimberly Houston
RN, MSN, CPNP and...CF Mom


Discover opportunities available to your child with CF. Our guest speakers will highlight local and national programs available for people with CF. We also invite parents of older children to join the meeting and share personal experiences.

Scroll down below the video to links to resources!

Recording of Workshop Available Below:
*Scroll below video to download slides from presentation!


Resources:

Below is a list of resources mentioned in the workshop. If you have additional resources to add to our list, please leave a comment!
  • thebonnellfoundation.org/resources
  • teamimpact.org
  • victoryjunction.org
  • Make A Wish - wish.org
  • letsrockcf.org/kicksback
  • www.icingsmiles.org
  • Free Access to National Parks
  • www.cfri.org
  • www.milesforcf.org
  • www.cflf.org/recreation-grants
  • Compass
  • www.abbviecfscholarship.com
  • www.vrtx.com/cystic-fibrosis/scholarships
  • cfyogi.org
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Coping with COVID-19 and an Evolving New Normal

3/26/2020

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TOPIC:
Coping with COVID-19 and an Evolving New Normal

Behavioral Health Integration Program (BHIP) & The Trauma Informed Care Program (T.I.C.) with Dr. Dana Crawford & Dr. Miguelina Germán, Montefiore Albert Einstein College of Medicine

DATE:
Thursday, March 26, 2020

The following documents may assist you and your family as you manage life during the COVID-19 pandemic. We know this is a difficult time for many families - especially those with CF. Please take a moment and review the resources below.

nasp helping children cope ... by api-451901542

stress-management-tips - pa... by api-451901542

covid resource list by api-451901542

care for the caregiver duri... by api-451901542

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Care for the Caregivers

5/30/2019

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TOPIC:
CF Center Mental Health Updates - Care for the Caregivers

Being a caregiver to an individual with chronic health needs can require time for re-energizing, reflection, and respite, among other things. Caregivers do not always have the luxury to give themselves the self-care they need. It is still important! Listen to Dr. Cupito discuss changes that are coming to all CF centers in an attempt to provide caregivers with connections for support.

DATE:
Thursday, May 30, 2019

GUEST SPEAKER:
Alexandra Cupito, PD

Recording of workshop available:
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The Importance of Total Health

2/8/2017

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Archived Event

Topic:
The Importance of Total Health: Mental Health Initiatives at UNC


Date
:
Wednesday, February 8, 2017


Guest Speakers:
Mary Beth Prieur, Ph.D.,
Psychologist,
UNC Mental Health Coordinator


Lynne McGibbon, MSW,
UNC Social Worker

*No notes or recordings are available from this workshop

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