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Our CF education workshops are in partnership with Bright Beginnings: a program for parents of newly diagnosed children with CF. Guest speaker, Lisa Greene, parent and Certified Family Life Educator, presented on "coping with the emotional rollercoaster". The emotions of dealing with CF have been described as being on an "emotional rollercoaster." Learning how to accept and cope with the ups and downs of life with CF as early as possible will help you build resilience. This workshop helped participants explore wellness & self-care strategies to nurture their resilience, as well as identify ways to cope with difficult feelings and stress.
Review the slides below for help coping with the emotion rollercoaster:
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Our recent workshop was in partnership with Bright Beginnings: a program for parents of newly diagnosed children with CF. Guest speaker, Lisa Greene, facilitated discussion and presented on resilience. Some key discussion points include:
Click the button below to download slides from the workshop. If you would like to participate in the live discussion, be sure to register for our next workshop in January.
2023 North American Cystic Fibrosis Conference (NACFC) Highlights Hear the latest research from the 2023 North American Cystic Fibrosis Conference (NACFC). WORKSHOP DATE: Thursday, November 30, 2023 GUEST PRESENTER: Dr. Charles Esther UNC Chapel Hill Children’s Research Institute Throughout the session, Dr. Esther references the several sessions available to watch on the CF Foundation (CFF) YouTube channel. Chick the button below to watch these recordings.
The Importance of Mental Health When Living With a Chronic Disease This workshop discusses the importance of mental health and how the entire family can be affected when you are dealing with CF. Learn how parents can help their children with mental health, as well as what signs to look for in themselves. Scroll below video for links to resources and slides! WORKSHOP DATE: Thursday, June 15, 2023 GUEST PRESENTER: Presented by Elizabeth Jorgensen, MSM, LCSW CF Social Worker Atrium Health Levine Children's CF Center Elizabeth Jorgensen currently works as a clinical social worker with Atrium Health Levine Children's Cystic Fibrosis program. Since starting as the CF social worker in 2015 she has started a Family Advisory Board, implemented mental health screening, and helped organize many educational events. Elizabeth obtained her LCSW in May 2018. During the summer of 2020 during the global pandemic she along with the Atrium Health CF psychologist started a virtual support group for CF teens. Watch Workshop Recording HANDOUTS click image to download pdf
TOPIC: Mental Health: Recognizing the Needs of Caregivers and Those with CF WORKSHOP DATE: Thursday, June 2, 2022 Virtual Event GUEST PRESENTER: Mary Beth Prieur, Ph.D. Clinical Psychology - UNC Amy Sangria, MSW, LCSW - UNC Ellen Penta, LCSW, LCAS-A - UNC UNC Clinical Psychologist and CF Social Workers discuss the very important topic of Mental Health. Recording of Workshop Available Below: TOPIC: Scholarships, Grants & Other Benefits for People with CF DATE: Thursday, October 7, 2021 GUEST SPEAKERS: Laura Bonnell Founder of the Bonnel Foundation thebonnellfoundation.org & Ellen Pentra UNC Social Worker & Kimberly Houston RN, MSN, CPNP and...CF Mom Discover opportunities available to your child with CF. Our guest speakers will highlight local and national programs available for people with CF. We also invite parents of older children to join the meeting and share personal experiences. Scroll down below the video to links to resources! Recording of Workshop Available Below: *Scroll below video to download slides from presentation!
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TOPIC:
CF Center Mental Health Updates - Care for the Caregivers
Being a caregiver to an individual with chronic health needs can require time for re-energizing, reflection, and respite, among other things. Caregivers do not always have the luxury to give themselves the self-care they need. It is still important! Listen to Dr. Cupito discuss changes that are coming to all CF centers in an attempt to provide caregivers with connections for support.
DATE:
Thursday, May 30, 2019
GUEST SPEAKER:
Alexandra Cupito, PD
Recording of workshop available:
CF Center Mental Health Updates - Care for the Caregivers
Being a caregiver to an individual with chronic health needs can require time for re-energizing, reflection, and respite, among other things. Caregivers do not always have the luxury to give themselves the self-care they need. It is still important! Listen to Dr. Cupito discuss changes that are coming to all CF centers in an attempt to provide caregivers with connections for support.
DATE:
Thursday, May 30, 2019
GUEST SPEAKER:
Alexandra Cupito, PD
Recording of workshop available:
Archived Event
Topic:
The Importance of Total Health: Mental Health Initiatives at UNC
Date:
Wednesday, February 8, 2017
Guest Speakers:
Mary Beth Prieur, Ph.D.,
Psychologist,
UNC Mental Health Coordinator
Lynne McGibbon, MSW,
UNC Social Worker
*No notes or recordings are available from this workshop
Topic:
The Importance of Total Health: Mental Health Initiatives at UNC
Date:
Wednesday, February 8, 2017
Guest Speakers:
Mary Beth Prieur, Ph.D.,
Psychologist,
UNC Mental Health Coordinator
Lynne McGibbon, MSW,
UNC Social Worker
*No notes or recordings are available from this workshop
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