2023 North American Cystic Fibrosis Conference (NACFC) Highlights Hear the latest research from the 2023 North American Cystic Fibrosis Conference (NACFC). WORKSHOP DATE: Thursday, November 30, 2023 GUEST PRESENTER: Dr. Charles Esther UNC Chapel Hill Children’s Research Institute Throughout the session, Dr. Esther references the several sessions available to watch on the CF Foundation (CFF) YouTube channel. Chick the button below to watch these recordings.
0 Comments
The Importance of Mental Health When Living With a Chronic Disease This workshop discusses the importance of mental health and how the entire family can be affected when you are dealing with CF. Learn how parents can help their children with mental health, as well as what signs to look for in themselves. Scroll below video for links to resources and slides! WORKSHOP DATE: Thursday, June 15, 2023 GUEST PRESENTER: Presented by Elizabeth Jorgensen, MSM, LCSW CF Social Worker Atrium Health Levine Children's CF Center Elizabeth Jorgensen currently works as a clinical social worker with Atrium Health Levine Children's Cystic Fibrosis program. Since starting as the CF social worker in 2015 she has started a Family Advisory Board, implemented mental health screening, and helped organize many educational events. Elizabeth obtained her LCSW in May 2018. During the summer of 2020 during the global pandemic she along with the Atrium Health CF psychologist started a virtual support group for CF teens. Watch Workshop Recording
HANDOUTS
click image to download pdf TOPIC: Mental Health: Recognizing the Needs of Caregivers and Those with CF WORKSHOP DATE: Thursday, June 2, 2022 Virtual Event GUEST PRESENTER: Mary Beth Prieur, Ph.D. Clinical Psychology - UNC Amy Sangria, MSW, LCSW - UNC Ellen Penta, LCSW, LCAS-A - UNC UNC Clinical Psychologist and CF Social Workers discuss the very important topic of Mental Health. Recording of Workshop Available Below: TOPIC: Scholarships, Grants & Other Benefits for People with CF DATE: Thursday, October 7, 2021 GUEST SPEAKERS: Laura Bonnell Founder of the Bonnel Foundation thebonnellfoundation.org & Ellen Pentra UNC Social Worker & Kimberly Houston RN, MSN, CPNP and...CF Mom Discover opportunities available to your child with CF. Our guest speakers will highlight local and national programs available for people with CF. We also invite parents of older children to join the meeting and share personal experiences. Scroll down below the video to links to resources! Recording of Workshop Available Below: *Scroll below video to download slides from presentation! |
All
504 Plans
Airway Clearance
Archived Events
CFF
CF Peer Connect
CF Research
Child Life Services
College
COMPASS
COVID 19
Dietitian
Duke
Family
Financial Assistance
Fitness
Gastroenterology (GI)
Infection Prevention
Insurance
Lung Function
Medications
Mental Health
Mentor
NACFC
Nutrition
Parenting
PFTs
Respiratory
School
Siblings
Support
UNC
December 2023
September 2023
June 2023
May 2023
February 2023
December 2022
October 2022
June 2022
April 2022
February 2022
December 2021
October 2021
August 2021
June 2021
April 2021
March 2021
December 2020
October 2020
August 2020
July 2020
May 2020
March 2020
January 2020
November 2019
September 2019
May 2019
March 2019
January 2019
November 2018
September 2018
June 2018
April 2018
February 2018
December 2017
October 2017
August 2017
June 2017
April 2017
February 2017
December 2016