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Past Workshops & Posts by CF Parents

Scholarships, Grants & Other Benefits for People with CF

10/9/2021

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TOPIC:
Scholarships, Grants & Other Benefits for People with CF

DATE:
Thursday, October 7, 2021

GUEST SPEAKERS:
Laura Bonnell
Founder of the Bonnel Foundation
thebonnellfoundation.org

&
Ellen Pentra
UNC Social Worker
& 
Kimberly Houston
RN, MSN, CPNP and...CF Mom


Discover opportunities available to your child with CF. Our guest speakers will highlight local and national programs available for people with CF. We also invite parents of older children to join the meeting and share personal experiences.

Scroll down below the video to links to resources!

Recording of Workshop Available Below:
*Scroll below video to download slides from presentation!


Resources:

Below is a list of resources mentioned in the workshop. If you have additional resources to add to our list, please leave a comment!
  • thebonnellfoundation.org/resources
  • teamimpact.org
  • victoryjunction.org
  • Make A Wish - wish.org
  • letsrockcf.org/kicksback
  • www.icingsmiles.org
  • Free Access to National Parks
  • www.cfri.org
  • www.milesforcf.org
  • www.cflf.org/recreation-grants
  • Compass
  • www.abbviecfscholarship.com
  • www.vrtx.com/cystic-fibrosis/scholarships
  • cfyogi.org
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Back-to-School Helpful Nutrition Tips for Snacks and Lunches

8/23/2021

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TOPIC:
Back-to-School Helpful Nutrition Tips for Snacks and Lunches

DATE:
Thursday, August 19, 2021

GUEST SPEAKERS:
Kimberly Stephenson, MS, RD, CSP
Kely Baumberger, PD, LDN, CSP

Are you getting ready to send your child with CF back to school? Want some great tips and hacks for lunch and snacks? Be sure to watch this informative and helpful workshop with two dietitians!

Recording of Workshop Available Below:
*Scroll below video to download slides from presentation!
DOWNLOAD SLIDES
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Coping with COVID-19 and an Evolving New Normal

3/26/2020

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TOPIC:
Coping with COVID-19 and an Evolving New Normal

Behavioral Health Integration Program (BHIP) & The Trauma Informed Care Program (T.I.C.) with Dr. Dana Crawford & Dr. Miguelina Germán, Montefiore Albert Einstein College of Medicine

DATE:
Thursday, March 26, 2020

The following documents may assist you and your family as you manage life during the COVID-19 pandemic. We know this is a difficult time for many families - especially those with CF. Please take a moment and review the resources below.

nasp helping children cope ... by api-451901542

stress-management-tips - pa... by api-451901542

covid resource list by api-451901542

care for the caregiver duri... by api-451901542

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Child Life Services & Support - Back To School & 504 Plans

9/12/2019

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TOPIC:
Child Life Services & Support
Back to School - 504 Plans / Partnering with Your Child's Teacher

DATE:
Thursday, September 12, 2019

GUEST SPEAKERS:
Henry DeArcia, BS, CCLA
Child Life Specialist
UNC Health Care

Lynne McGibbon, LCSW
CF Social Worker
UNC Health Care
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School Considerations

6/7/2017

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ARCHIVED EVENT

DATE:
Wednesday, June 7, 2017


TOPIC:

School Considerations (504 plans, home bound schooling and school during hospitalization) and Child Life Services (addressing procedure anxiety,  Child Life support/services in the clinic and during hospitalization)

Guest Speakers:       
Karen Weatherly,
Hospital School Teacher
UNC Hospital

Jordan Hulliger, LRT/CTRS
Child Life Specialist
UNC Hospital

*No notes or recordings available from this workshop

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