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TOPIC: Insurance 101: Insurance Basics for People with CF WORKSHOP DATE: Thursday, February 16, 2023 GUEST PRESENTER: Presented by Beth Sufian Beth Sufian is an attorney and partner in the law firm of Sufian & Passamano, LLP. Beth is a 57 year old adult with CF who has spent the past 30 years of her life advocating for the rights of people with CF in the United States. Beth is Director of the CF Legal Information Hotline which receives 10,000 calls a year from people with CF, their family members and the CF Care Centers across the country. Beth is also director of the CF Social Security Project which represents people with CF in Social Security disability and SSI applications as well as Social Security Continuing Disability reviews at no cost to the individuals thanks to funding from the CF Foundation.  In this workshop presentation, Beth provides information on how a child or adult becomes eligible for Social Security monthly payments and the health insurance that comes along with eligibility.
Beth also discussed the rights of children with CF in education and the rights of adults and parents in employment, as well as ways to access health insurance coverage.
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TOPIC: Scholarships, Grants & Other Benefits for People with CF DATE: Thursday, October 7, 2021 GUEST SPEAKERS: Laura Bonnell Founder of the Bonnel Foundation thebonnellfoundation.org & Ellen Pentra UNC Social Worker & Kimberly Houston RN, MSN, CPNP and...CF Mom Discover opportunities available to your child with CF. Our guest speakers will highlight local and national programs available for people with CF. We also invite parents of older children to join the meeting and share personal experiences. Scroll down below the video to links to resources! Recording of Workshop Available Below: *Scroll below video to download slides from presentation!
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Child Life Services & Support
Back to School - 504 Plans / Partnering with Your Child's Teacher
DATE:
Thursday, September 12, 2019
GUEST SPEAKERS:
Henry DeArcia, BS, CCLA
Child Life Specialist
UNC Health Care
Lynne McGibbon, LCSW
CF Social Worker
UNC Health Care
DATE:
Wednesday, June 7, 2017
TOPIC:
School Considerations (504 plans, home bound schooling and school during hospitalization) and Child Life Services (addressing procedure anxiety, Child Life support/services in the clinic and during hospitalization)
Guest Speakers:
Karen Weatherly,
Hospital School Teacher
UNC Hospital
Jordan Hulliger, LRT/CTRS
Child Life Specialist
UNC Hospital
*No notes or recordings available from this workshop
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