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Our recent workshop was in partnership with Bright Beginnings: a program for parents of newly diagnosed children with CF. Guest speaker, Lisa Greene, facilitated discussion and presented on resilience. Some key discussion points include:
Click the button below to download slides from the workshop. If you would like to participate in the live discussion, be sure to register for our next workshop in January.
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Discover how to connect with a CF Peer for support!  CF Peer Connect is a one-to-one peer support program for people with CF and their family members ages 16 and older. No matter your age or stage in life, you can connect with someone who has been through a similar situation to share stories and learn from each other. In this Fall workshop, you'll learn how to take the step to connect with a peer and get the support you need. Watch Workshop Recording Below: Workshop Date: Thursday, September 14, 2023 Hosted by: CF Peer Connect Guest Speaker: Claudia Rodriguez, CFF Bilingual Community Support Specialist How to Request a Peer Connection:  Download Flyer (English/Spanish):
The Importance of Mental Health When Living With a Chronic Disease This workshop discusses the importance of mental health and how the entire family can be affected when you are dealing with CF. Learn how parents can help their children with mental health, as well as what signs to look for in themselves. Scroll below video for links to resources and slides! WORKSHOP DATE: Thursday, June 15, 2023 GUEST PRESENTER: Presented by Elizabeth Jorgensen, MSM, LCSW CF Social Worker Atrium Health Levine Children's CF Center Elizabeth Jorgensen currently works as a clinical social worker with Atrium Health Levine Children's Cystic Fibrosis program. Since starting as the CF social worker in 2015 she has started a Family Advisory Board, implemented mental health screening, and helped organize many educational events. Elizabeth obtained her LCSW in May 2018. During the summer of 2020 during the global pandemic she along with the Atrium Health CF psychologist started a virtual support group for CF teens. Watch Workshop Recording HANDOUTS click image to download pdf
 CF Peer Connect is a one-to-one peer mentoring program for adults with CF and their family members to connect about shared experiences. No matter what you’re going through, there is someone who has been through a similar experience and can offer support. After you request a peer mentor, the CF Peer Connect team will match you with an adult with CF or a family member -- parent, partner, or spouse -- who has experience with the topics you want to learn more about.
You can request a peer mentor to talk about topics that are important to you, including:
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