"With medical equipment changing and improving, and new medicines & therapies being introduced, a parent educational group is a terrific way to alert parents and caregivers to new ideas of which they may not have heard."

— Steve and Lynn, CF Parents
Please RSVP for our upcoming workshop below.
ZOOM information will be provided after you RSVP.

    CF Education Workshop Registration
    UPCOMING WORKSHOP:
    Thursday, April 20, 2023 — 7:00 - 8:30pm (EST)
The CF Parent Education Group presents workshops equally intended for care partners and adults with CF.

Upcoming Workshop

Thursday, April 20, 2023

Legal Rights of Children and Adults with CF
Presented by: Beth Sufian

Beth Sufian is an attorney and partner in the law firm of Sufian & Passamano, LLP.  Beth is a 57 year old adult with CF who has spent the past 30 years of her life advocating for the rights of people with CF in the United States.

Beth is Director of the CF Legal Information Hotline which receives 10,000 calls a year from people with CF, their family members and the CF Care Centers across the country.

Beth is also director of the CF Social Security Project which represents people with CF in Social Security disability and SSI applications as well as Social Security Continuing Disability reviews at no cost to the individuals thanks to funding from the CF Foundation.

Beth's presentation will provide information on how a child or adult becomes eligible for Social Security monthly payments and the health insurance that comes along with eligibility. Beth will also discuss the rights of children with CF in education and the rights of adults and parents in employment as well as ways to access health insurance coverage.
ZOOM login information provided following registration.