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Discover how to connect with a CF Peer for support!  CF Peer Connect is a one-to-one peer support program for people with CF and their family members ages 16 and older. No matter your age or stage in life, you can connect with someone who has been through a similar situation to share stories and learn from each other. In this Fall workshop, you'll learn how to take the step to connect with a peer and get the support you need. Watch Workshop Recording Below: Workshop Date: Thursday, September 14, 2023 Hosted by: CF Peer Connect Guest Speaker: Claudia Rodriguez, CFF Bilingual Community Support Specialist How to Request a Peer Connection:  Download Flyer (English/Spanish):
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TOPIC: Insurance 101: Insurance Basics for People with CF WORKSHOP DATE: Thursday, February 16, 2023 GUEST PRESENTER: Presented by CFF COMPASS Kelly Muldowney Senior Case Manager, CF Foundation Are you a young adult about to go off of your parents' insurance? A parent of a newly diagnosed child with CF? Switching employers or needing to change health insurance plans? Then THIS is the workshop for you! Overview of Topics Covered:
PRESENTATION RECORDING: ADDITIONAL TOOLS:
TOPIC: NACFC 2022 Research Highlights: Update for CF Parents WORKSHOP DATE: Thursday, December 8, 2022 GUEST PRESENTER: Charles Esther, MD, PhD Hear the latest research and updates on CF from the 2022 North American Cystic Fibrosis Conference (NACFC). PRESENTATION RECORDING: TOPIC: Get the Respiratory Rundown with Duke University Respiratory Therapists. Presentation features useful information on therapies, devices, cleaning, and exercise/therapy. Including info on treatments while on Trikafta. DATE: Thursday, February 24, 2022 GUEST SPEAKERS: John Davidson & Kathe Neeley Duke University Respiratory Therapists Recording of Workshop Available Below: Product Information The below products were referenced in the workshop. Click the image for more information on the manufacturers website.
TOPIC: News & Highlights from the 2021 North American CF Conference (NACFC) DATE: Thursday, December 9, 2021 GUEST SPEAKERS: Jennifer Goralski, MD UNC Pediatric and Adult CF Clinics Listen to CF News and Research Highlights from the 2021 NACFC. Recording of Workshop Available Below: *Scroll below video to download slides from presentation! TOPIC: 2020 NACFC Recap with Dr. Retsch-Bogart Dr. Retsch-Bogart, Pediatric Pulmonologist from UNC-CH shared recap and updates from the 2020 North American Cystic Fibrosis Conference (NACFC). DATE: Thursday, December 10, 2020 GUEST SPEAKERS: Dr. Retsch-Bogart Pediatric Pulmonologist UNC-Chapel Hill Video Recording of Workshop Available: TOPIC: Understanding Compass DATE: Thursday, October 8, 2020 GUEST SPEAKERS: Aaron Stocks COMPASS Operations Manager Video Recording of Workshop Available:  CF Peer Connect is a one-to-one peer mentoring program for adults with CF and their family members to connect about shared experiences. No matter what you’re going through, there is someone who has been through a similar experience and can offer support. After you request a peer mentor, the CF Peer Connect team will match you with an adult with CF or a family member -- parent, partner, or spouse -- who has experience with the topics you want to learn more about.
You can request a peer mentor to talk about topics that are important to you, including:
TOPIC: Research Updates from 2019 North American Cystic Fibrosis Conference (NACFC) DATE: Thursday, November 19, 2019 GUEST SPEAKERS: Dr. Marianne Muhlebach, MD Recording from this workshop is available: TOPIC: CF Center Mental Health Updates - Care for the Caregivers Being a caregiver to an individual with chronic health needs can require time for re-energizing, reflection, and respite, among other things. Caregivers do not always have the luxury to give themselves the self-care they need. It is still important! Listen to Dr. Cupito discuss changes that are coming to all CF centers in an attempt to provide caregivers with connections for support. DATE: Thursday, May 30, 2019 GUEST SPEAKER: Alexandra Cupito, PD Recording of workshop available: |
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