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All Things Cystic Fibrosis
Past Workshops & Posts by CF Parents

Insurance 101: Insurance Basics for People with CF

2/16/2023

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TOPIC:
Insurance 101: Insurance Basics for People with CF

WORKSHOP DATE:
Thursday, February 16, 2023

GUEST PRESENTER:
Presented by CFF COMPASS
Kelly Muldowney
Senior Case Manager, CF Foundation


Are you a young adult about to go off of your parents' insurance?
A parent of a newly diagnosed child with CF?
Switching employers or needing to change health insurance plans?
Then THIS is the workshop for you!

Overview of Topics Covered:
  • Insurance basic terminology
  • What are the options?
  • When can you get insurance?
  • What do you need prepared?
  • You got covered! What comes next?
  • Coordinating more than one insurance
  • Denials, Appeals, Authorizations
  • Q&A

PRESENTATION RECORDING:

ADDITIONAL TOOLS:

  • Navigating CF Series
  • Compass
  • CFF.org
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Scholarships, Grants & Other Benefits for People with CF

10/9/2021

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TOPIC:
Scholarships, Grants & Other Benefits for People with CF

DATE:
Thursday, October 7, 2021

GUEST SPEAKERS:
Laura Bonnell
Founder of the Bonnel Foundation
thebonnellfoundation.org

&
Ellen Pentra
UNC Social Worker
& 
Kimberly Houston
RN, MSN, CPNP and...CF Mom


Discover opportunities available to your child with CF. Our guest speakers will highlight local and national programs available for people with CF. We also invite parents of older children to join the meeting and share personal experiences.

Scroll down below the video to links to resources!

Recording of Workshop Available Below:
*Scroll below video to download slides from presentation!


Resources:

Below is a list of resources mentioned in the workshop. If you have additional resources to add to our list, please leave a comment!
  • thebonnellfoundation.org/resources
  • teamimpact.org
  • victoryjunction.org
  • Make A Wish - wish.org
  • letsrockcf.org/kicksback
  • www.icingsmiles.org
  • Free Access to National Parks
  • www.cfri.org
  • www.milesforcf.org
  • www.cflf.org/recreation-grants
  • Compass
  • www.abbviecfscholarship.com
  • www.vrtx.com/cystic-fibrosis/scholarships
  • cfyogi.org
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Back-to-School Helpful Nutrition Tips for Snacks and Lunches

8/23/2021

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TOPIC:
Back-to-School Helpful Nutrition Tips for Snacks and Lunches

DATE:
Thursday, August 19, 2021

GUEST SPEAKERS:
Kimberly Stephenson, MS, RD, CSP
Kely Baumberger, PD, LDN, CSP

Are you getting ready to send your child with CF back to school? Want some great tips and hacks for lunch and snacks? Be sure to watch this informative and helpful workshop with two dietitians!

Recording of Workshop Available Below:
*Scroll below video to download slides from presentation!
DOWNLOAD SLIDES
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Importance of Staying Active With CF

1/10/2019

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Topic:
The importance of staying active throughout childhood, the teen years, and beyond. Also, the value of eating healthy high fats.

Date:
Thursday, January 10, 2019

Guest Speakers:
Brooke Guthrie
20 year old, junior at High Point University
Part-time Physical Therapy Technician, Personal Trainer at HPU
Also happens to have CF

Rebecca Byrd, PT, DPT, CCS
Duke University Health System
Cardiopulmonary Rehabilitation

Recording of workshop available:
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Transition to College

4/5/2017

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ARCHIVED EVENT

TOPIC:
The Transition to College – Perspectives from a young adult with Cystic Fibrosis

DATE:
Wednesday, April 5, 2017

GUEST SPEAKERS:
Magnolia Long,
Adult with CF


*No notes or recordings available from this workshop.
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