CYSTIC FIBROSIS PARENT EDUCATION
  • HOME
  • ABOUT
  • CONTACT
  • UPCOMING WORKSHOPS
  • ARCHIVES
  • CF BLOG

All Things Cystic Fibrosis
Past Workshops & Posts by CF Parents

Legal Rights of Children and Adults with CF

5/4/2023

4 Comments

 
TOPIC:
Insurance 101: Insurance Basics for People with CF

WORKSHOP DATE:
Thursday, February 16, 2023

GUEST PRESENTER:
Presented by Beth Sufian

Beth Sufian is an attorney and partner in the law firm of Sufian & Passamano, LLP.  Beth is a 57 year old adult with CF who has spent the past 30 years of her life advocating for the rights of people with CF in the United States.

Beth is Director of the CF Legal Information Hotline which receives 10,000 calls a year from people with CF, their family members and the CF Care Centers across the country.

Beth is also director of the CF Social Security Project which represents people with CF in Social Security disability and SSI applications as well as Social Security Continuing Disability reviews at no cost to the individuals thanks to funding from the CF Foundation.

Picture
DOWNLOAD SLIDES
In this workshop presentation, Beth provides information on how a child or adult becomes eligible for Social Security monthly payments and the health insurance that comes along with eligibility.

Beth also discussed the rights of children with CF in education and the rights of adults and parents in employment, as well as ways to access health insurance coverage.
4 Comments
Tristan Freeman link
12/10/2024 01:41:52 pm

Wow this blog is awesome. Wish to see this much more like this. Thanks for sharing your information!

Reply
Robert Madrigal link
12/10/2024 01:44:57 pm

Nice article keep it up like this in your future.I hope you do best afford and make future bright.

Reply
Edwin Dudley link
12/10/2024 01:47:18 pm

Hello sir nice to read your all blogs and learned alot of new knowledge.Thank you sir

Reply
John Griffith link
12/20/2024 10:58:01 am

Children and adults with CF have unique legal rights ensuring access to healthcare, education, and workplace support. Knowing these rights is empowering!

Reply



Leave a Reply.

    Picture
    ABOUT US
    CONTACT US
    UPCOMING EVENTS

    Categories

    All
    504 Plans
    Airway Clearance
    Archived Events
    Bright Beginnings
    CFF
    CF Peer Connect
    CF Research
    Child Life Services
    College
    COMPASS
    COVID 19
    Dietitian
    Duke
    Family
    Financial Assistance
    Fitness
    Gastroenterology (GI)
    Infection Prevention
    Insurance
    Lung Function
    Medications
    Mental Health
    Mentor
    NACFC
    Nutrition
    Parenting
    PFTs
    Respiratory
    School
    Siblings
    Support
    UNC

    Archives

    March 2025
    February 2025
    October 2024
    December 2023
    September 2023
    June 2023
    May 2023
    February 2023
    December 2022
    October 2022
    June 2022
    April 2022
    February 2022
    December 2021
    October 2021
    August 2021
    June 2021
    April 2021
    March 2021
    December 2020
    October 2020
    August 2020
    July 2020
    May 2020
    March 2020
    January 2020
    November 2019
    September 2019
    May 2019
    March 2019
    January 2019
    November 2018
    September 2018
    June 2018
    April 2018
    February 2018
    December 2017
    October 2017
    August 2017
    June 2017
    April 2017
    February 2017
    December 2016

    RSS Feed

DISCLAIMER: The information published on this website or in any connected material is the opinion of Jennifer Webber and CF Parent Education Group only, and is not meant to replace professional medical or mental health care. Persons should always seek the advice of a medical professional when making decisions about personal healthcare or treatment.

We Look Forward To Connecting With You


UPCOMING WORKSHOP
ARCHIVED EVENTS
ABOUT US
CONTACT US
BLOG

 © 2025 CF Parent Education
Site Design rebeccapreslar.com

  • HOME
  • ABOUT
  • CONTACT
  • UPCOMING WORKSHOPS
  • ARCHIVES
  • CF BLOG