TOPIC: 2020 NACFC Recap with Dr. Retsch-Bogart Dr. Retsch-Bogart, Pediatric Pulmonologist from UNC-CH shared recap and updates from the 2020 North American Cystic Fibrosis Conference (NACFC). DATE: Thursday, December 10, 2020 GUEST SPEAKERS: Dr. Retsch-Bogart Pediatric Pulmonologist UNC-Chapel Hill Video Recording of Workshop Available:
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TOPIC: Understanding Compass DATE: Thursday, October 8, 2020 GUEST SPEAKERS: Aaron Stocks COMPASS Operations Manager Video Recording of Workshop Available:
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Helping Your Children Be More Independent Discuss strategies to help your children develop skills to become more independent with their treatments and self-care. DATE: Thursday, August 13, 2020 GUEST SPEAKERS: Ellen Pentra Social Worker, UNC CF Pediatrics Jennifer Webber CF Parent Video Recording of Workshop Available: Presentation Slides:
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Tips to Stay Active During Quarantine! DATE: Thursday, May 21, 2020 GUEST SPEAKERS: Caroline Webber 2nd year student at UNC Brooke Guthrie Graduate of High Point University *Click the links below to view Resources and Tips on Staying Active:
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Coping with COVID-19 and an Evolving New Normal Behavioral Health Integration Program (BHIP) & The Trauma Informed Care Program (T.I.C.) with Dr. Dana Crawford & Dr. Miguelina Germán, Montefiore Albert Einstein College of Medicine DATE: Thursday, March 26, 2020 The following documents may assist you and your family as you manage life during the COVID-19 pandemic. We know this is a difficult time for many families - especially those with CF. Please take a moment and review the resources below. TOPIC: Understanding Lung Function Tests (PFTs) DATE: Thursday, January 23, 2020 GUEST SPEAKERS: Priscilla Kilts, MSRC, RRT, RCP Recording of this workshop is available: TOPIC: Research Updates from 2019 North American Cystic Fibrosis Conference (NACFC) DATE: Thursday, November 19, 2019 GUEST SPEAKERS: Dr. Marianne Muhlebach, MD Recording from this workshop is available: TOPIC:
Child Life Services & Support Back to School - 504 Plans / Partnering with Your Child's Teacher DATE: Thursday, September 12, 2019 GUEST SPEAKERS: Henry DeArcia, BS, CCLA Child Life Specialist UNC Health Care Lynne McGibbon, LCSW CF Social Worker UNC Health Care TOPIC: CF Center Mental Health Updates - Care for the Caregivers Being a caregiver to an individual with chronic health needs can require time for re-energizing, reflection, and respite, among other things. Caregivers do not always have the luxury to give themselves the self-care they need. It is still important! Listen to Dr. Cupito discuss changes that are coming to all CF centers in an attempt to provide caregivers with connections for support. DATE: Thursday, May 30, 2019 GUEST SPEAKER: Alexandra Cupito, PD Recording of workshop available: TOPIC: Growing up with a sibling who has CF DATE: Thursday, March 7, 2019 GUEST SPEAKERS: A small panel of young adults who have a sibling with CF Recording of this workshop available: |
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