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All Things Cystic Fibrosis
Past Workshops & Posts by CF Parents

Understanding CFF Compass

10/8/2020

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TOPIC:
Understanding Compass

DATE:
Thursday, October 8, 2020

GUEST SPEAKERS:
Aaron Stocks
COMPASS Operations Manager

Video Recording of Workshop Available:
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Helping Your Children Be More Independent

8/13/2020

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TOPIC:
Helping Your Children Be More Independent

Discuss strategies to help your children develop skills to become more independent with their treatments and self-care.

DATE:
Thursday, August 13, 2020

GUEST SPEAKERS:
Ellen Pentra
Social Worker,
UNC CF Pediatrics

Jennifer Webber
CF Parent

Video Recording of Workshop Available:

Presentation Slides:

helping your child be more ... by api-451901542

facilitating independence i... by api-451901542

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Tips to Stay Active during Quarantine!

5/21/2020

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TOPIC:
Tips to Stay Active During Quarantine!

DATE:
Thursday, May 21, 2020

GUEST SPEAKERS:
Caroline Webber
2nd year student at UNC

Brooke Guthrie
Graduate of High Point University

*Click the links below to view Resources and Tips on Staying Active:

resources on exercise and cf by api-451901542

CFF.org — WHY FITNESS MATTERS
CFF.org — CREATING A FITNESS PLAN THAT WORKS FOR YOU
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Coping with COVID-19 and an Evolving New Normal

3/26/2020

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TOPIC:
Coping with COVID-19 and an Evolving New Normal

Behavioral Health Integration Program (BHIP) & The Trauma Informed Care Program (T.I.C.) with Dr. Dana Crawford & Dr. Miguelina Germán, Montefiore Albert Einstein College of Medicine

DATE:
Thursday, March 26, 2020

The following documents may assist you and your family as you manage life during the COVID-19 pandemic. We know this is a difficult time for many families - especially those with CF. Please take a moment and review the resources below.

nasp helping children cope ... by api-451901542

stress-management-tips - pa... by api-451901542

covid resource list by api-451901542

care for the caregiver duri... by api-451901542

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Understanding Lung Function Tests (PFTs)

1/23/2020

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TOPIC:
Understanding Lung Function Tests (PFTs)

DATE:
Thursday, January 23, 2020

GUEST SPEAKERS:
Priscilla Kilts, MSRC, RRT, RCP

Recording of this workshop is available:
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Research Updates from 2019 NACFC

11/19/2019

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TOPIC:
Research Updates from 2019 North American Cystic Fibrosis Conference (NACFC)

DATE:
Thursday, November 19, 2019

GUEST SPEAKERS:
Dr. Marianne Muhlebach, MD

Recording from this workshop is available:
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Child Life Services & Support - Back To School & 504 Plans

9/12/2019

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TOPIC:
Child Life Services & Support
Back to School - 504 Plans / Partnering with Your Child's Teacher

DATE:
Thursday, September 12, 2019

GUEST SPEAKERS:
Henry DeArcia, BS, CCLA
Child Life Specialist
UNC Health Care

Lynne McGibbon, LCSW
CF Social Worker
UNC Health Care
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Care for the Caregivers

5/30/2019

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TOPIC:
CF Center Mental Health Updates - Care for the Caregivers

Being a caregiver to an individual with chronic health needs can require time for re-energizing, reflection, and respite, among other things. Caregivers do not always have the luxury to give themselves the self-care they need. It is still important! Listen to Dr. Cupito discuss changes that are coming to all CF centers in an attempt to provide caregivers with connections for support.

DATE:
Thursday, May 30, 2019

GUEST SPEAKER:
Alexandra Cupito, PD

Recording of workshop available:
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Growing Up With a Sibling Who Has CF

3/7/2019

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TOPIC:
Growing up with a sibling who has CF

DATE:
Thursday, March 7, 2019

GUEST SPEAKERS:
A small panel of young adults who have a sibling with CF

Recording of this workshop available:
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Importance of Staying Active With CF

1/10/2019

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Topic:
The importance of staying active throughout childhood, the teen years, and beyond. Also, the value of eating healthy high fats.

Date:
Thursday, January 10, 2019

Guest Speakers:
Brooke Guthrie
20 year old, junior at High Point University
Part-time Physical Therapy Technician, Personal Trainer at HPU
Also happens to have CF

Rebecca Byrd, PT, DPT, CCS
Duke University Health System
Cardiopulmonary Rehabilitation

Recording of workshop available:
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