TOPIC:
2020 NACFC Recap with Dr. Retsch-Bogart

Dr. Retsch-Bogart, Pediatric Pulmonologist from UNC-CH shared recap and updates from the 2020 North American Cystic Fibrosis Conference (NACFC).

DATE:
Thursday, December 10, 2020

GUEST SPEAKERS:
Dr. Retsch-Bogart
Pediatric Pulmonologist
UNC-Chapel Hill

Video Recording of Workshop Available:

TOPIC:
Understanding Compass

DATE:
Thursday, October 8, 2020

GUEST SPEAKERS:
Aaron Stocks
COMPASS Operations Manager

Video Recording of Workshop Available:

TOPIC:
Helping Your Children Be More Independent

Discuss strategies to help your children develop skills to become more independent with their treatments and self-care.

DATE:
Thursday, August 13, 2020

GUEST SPEAKERS:
Ellen Pentra
Social Worker,
UNC CF Pediatrics

Jennifer Webber
CF Parent

Video Recording of Workshop Available:

TOPIC:
Tips to Stay Active During Quarantine!

DATE:
Thursday, May 21, 2020

GUEST SPEAKERS:
Caroline Webber
2nd year student at UNC

Brooke Guthrie
Graduate of High Point University

*Click the links below to view Resources and Tips on Staying Active:

TOPIC:
Coping with COVID-19 and an Evolving New Normal

Behavioral Health Integration Program (BHIP) & The Trauma Informed Care Program (T.I.C.) with Dr. Dana Crawford & Dr. Miguelina Germán, Montefiore Albert Einstein College of Medicine

DATE:
Thursday, March 26, 2020

The following documents may assist you and your family as you manage life during the COVID-19 pandemic. We know this is a difficult time for many families - especially those with CF. Please take a moment and review the resources below.

TOPIC:
Understanding Lung Function Tests (PFTs)

DATE:
Thursday, January 23, 2020

GUEST SPEAKERS:
Priscilla Kilts, MSRC, RRT, RCP

Recording of this workshop is available:

TOPIC:
Research Updates from 2019 North American Cystic Fibrosis Conference (NACFC)

DATE:
Thursday, November 19, 2019

GUEST SPEAKERS:
Dr. Marianne Muhlebach, MD

Recording from this workshop is available:

TOPIC:
Child Life Services & Support
Back to School - 504 Plans / Partnering with Your Child's Teacher

DATE:
Thursday, September 12, 2019

GUEST SPEAKERS:
Henry DeArcia, BS, CCLA
Child Life Specialist
UNC Health Care

Lynne McGibbon, LCSW
CF Social Worker
UNC Health Care

TOPIC:
CF Center Mental Health Updates - Care for the Caregivers

Being a caregiver to an individual with chronic health needs can require time for re-energizing, reflection, and respite, among other things. Caregivers do not always have the luxury to give themselves the self-care they need. It is still important! Listen to Dr. Cupito discuss changes that are coming to all CF centers in an attempt to provide caregivers with connections for support.

DATE:
Thursday, May 30, 2019

GUEST SPEAKER:
Alexandra Cupito, PD

Recording of workshop available:

TOPIC:
Growing up with a sibling who has CF

DATE:
Thursday, March 7, 2019

GUEST SPEAKERS:
A small panel of young adults who have a sibling with CF

Recording of this workshop available: