Upcoming Workshop

Join us for our next (virtual) CF Education Workshop.
WHEN:
Thursday, April 22, 2021

​TOPIC:
Managing the Medication Madness!
Learn tips for organizing and keeping track of medications, the various specialty pharmacies, and getting a system for refilling them so you can save time! Also, learn about programs for CF medications that offer nutritional supplements at no extra cost!  This is a must-see presentation! New apps are available for your teens to help them become more independent, as well – come and learn how to manage the medication madness!

GUEST SPEAKERS:
Clinical Pharmacists, UNC Chapel Hill
  • Cameron McKinzie, Pharm.D.
  • Charissa Kam, Pharm.D.

Cameron McKinzie, Pharm.D., who presented for us in 2017, is returning with her colleague, Charissa Kam, Pharm.D., to help parents manage the medication madness!
Zoom information will be provided after RSVP

                                                    PREVIOUS MEETINGS


Topic:     Helping your children be more independent
 
Presentation:  Ellen Penta; social worker, UNC CF Pediatrics   
                               Jennifer Webber, parent
 
Discuss strategies to help your children develop skills to become more independent with their treatments and self care.
 




Topic:     Tips to Stay Active during Quarantine! (Learn some and share some!)
 Presenters:  Caroline Webber, 2nd year student at UNC;      
    Brooke Guthrie, graduate of High Point University 
 
In addition, resources will be given to explore, and we welcome ideas your want to share with the group, as well! 

This meeting will be virtual. We welcome adults with CF, as well!
 

 


​MARCH 26, 2020
Time:           7 PM
​
Presentation:     Video – Behavioral Health Integration Program (BHIP) & The Trauma Informed Care Program (T.I.C.) – w/ Dr. Dana Crawford & Dr. Miguelina Germán, Montefiore Albert Einstein College of Medicine

The CF Foundation has a wealth of up to date information, and COMPASS has extended their hours for assistance:
cf_patient_program_overview.pdf
File Size: 1274 kb
File Type: pdf
Download File
medactionplan_pro_app_demo.pdf
File Size: 1297 kb
File Type: pdf
Download File
APRIL 2018
Topic:        CF Nutrition from A to Zinc
Speakers:          Kimberly Stephenson, MS, RD, CSP/ UNC Pediatric Dietitian
                     Kelly Baumberger, RD, CSP/ UNC Pediatric Dietitian
                   Vanessa Yount, RD, LDN/ Duke Pediatric Dietitian
                   Rebecca Gregory, MS, RD, LDN/ Duke Adult Dietitian          
Time:               6-7:30 PM
Date:                Thursday, April 26th, 2018



cf_nutrition_info.pdf
File Size: 1240 kb
File Type: pdf
Download File
FEBRUARY 2018
Topic:         Motivational Interviewing Parent Tips 101
Motivating kids with CF to take on more responsibility with their care as they get older can sometimes feel like an uphill battle.  Motivational interviewing is a style of communication that has been shown to facilitate behavior change and improve medication adherence in a supportive and empathic manner.
Speaker:         Nadia Islam, PhD, Psychology Fellow at UNC
Date:               Wednesday, February 28th, 2018

(Listen to Meeting Audio below)

DECEMBER 2017

Topic:         Research Highlights from the North American Cystic  Fibrosis Conference
Speaker:         Scott H. Donaldson, MD, Director, UNC Adult CF Center
Date:               Wednesday, December 13, 2017

OCTOBER 2017
Topic:  Respiratory Tips (nebulizer cleaning tips, questions regarding airway clearance devices, Vests, etc.)
Speakers:       Delly Garcia, Respiratory Therapist
                       Ronnie Reynolds, Respiratory Therapist
Date:                Wednesday, October 11, 2017

AUGUST 2017
Topic: An informal evening discussion led by our fabulous CF nurses.
Speakers: Jennifer Leandro, RN CF Clinic Nurse
Martha Taylor, RN CF Clinic Nurse
Sheree Berckmans, RN CF Clinic Nurse
Ashley Austin, RN, BSN, CPN
Date: Wednesday, August 9th, 2017

(Link to meeting video below)
unccn.mediasite.mcnc.org/mcnc/Play/7ca9854a0c024816b935771789824d8f1d

JUNE 2017
                                                                                                             Topic:  School Considerations (504 plans, home bound schooling and school during hospitalization) and Child Life Services (addressing procedure anxiety,  Child Life support/services in the clinic and during hospitalization)
Speakers:        Karen Weatherly, Hospital School Teacher- UNC Hospital
                    Jordan Hulliger, LRT/CTRS Child Life Specialist- UNC Hospital
Date:   Wednesday, June 7th, 2017

APRIL 2017
Topic:       The Transition to College – Perspectives from a young adult with Cystic Fibrosis
Speakers:  Magnolia Long, Adult with CF
Date:            Wednesday, April 5, 2017

FEBRUARY 2017
Topic: The Importance of Total Health: Mental Health Initiatives at UNC
Speakers: Mary Beth Prieur, Ph.D., Psychologist, UNC Mental Health Coordinator
Lynne McGibbon, MSW, UNC Social Worker
Date: Wednesday, February 8, 2017

DECEMBER 2016
Topic: Research Highlights from the North American Cystic Fibrosis Conference
Speakers: Margaret W. Leigh, MD, Director, UNC Pediatric CF Center
George Retsch-Bogart, MD, Associate Director, UNC Pediatric CF
Center
Date: Wednesday, December 14, 2016