Category: Support

Scholarships, Grants & Other Benefits for People with CF

10/9/2021

TOPIC:
Scholarships, Grants & Other Benefits for People with CF

DATE:
Thursday, October 7, 2021

GUEST SPEAKERS:
Laura Bonnell
Founder of the Bonnel Foundation
thebonnellfoundation.org
&
Ellen Pentra
UNC Social Worker
&
Kimberly Houston
RN, MSN, CPNP and...CF Mom

Discover opportunities available to your child with CF. Our guest speakers will highlight local and national programs available for people with CF. We also invite parents of older children to join the meeting and share personal experiences.

Scroll down below the video to links to resources!

Recording of Workshop Available Below:
*Scroll below video to download slides from presentation!

Resources:

Below is a list of resources mentioned in the workshop. If you have additional resources to add to our list, please leave a comment!

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Managing the Medication Madness

4/26/2021

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Enjoy the video presentation, and scroll below for links to recommended apps and websites to help you manage your medications!

TOPIC:
Managing the Medication Madness
Learn tips for organizing and keeping track of medications, the various specialty pharmacies, and getting a system for refilling them so you can save time. Also, learn about programs for CF medications that offer nutritional supplements at no extra cost!

DATE:
Thursday, April 22, 2021

GUEST SPEAKERS:
Clinical Pharmacists, UNC Chapel HillCameron McKinzie, Pharm.D. & Charissa Kam, Pharm.D.

Video Recording of Workshop:

DOWNLOAD SLIDES

CF Programs and Patient Assistance

HFealthwell Foundation®

CF Treatments Fund
CF Vitamins and Supplements Fund

www.healthwellfoundation.org

Creon® CareForward
www.creon.com/cfcareforward

Live2Thrive (Zenpep®)
www.live2thrive.org

Vivus Healthstore (Pancreaze)
store.vivushealth.com

Vertex GPS
www.vertexgps.com

Pulmozyme
www.pulmozyme.com

MedActionPlan
medactionplan.com

FREE APPS:

MyMedSchedule
medactionplan.com/mymedschedule

Mango Health
www.mangohealth.com

Medisafe
www.medisafeapp.com

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Understanding CFF Compass

10/8/2020

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TOPIC:
Understanding Compass

DATE:
Thursday, October 8, 2020

GUEST SPEAKERS:
Aaron Stocks
COMPASS Operations Manager

Video Recording of Workshop Available:

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CF Peer Connect

1/15/2020

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CF Peer Connect is a one-to-one peer mentoring program for adults with CF and their family members to connect about shared experiences. No matter what you’re going through, there is someone who has been through a similar experience and can offer support. After you request a peer mentor, the CF Peer Connect team will match you with an adult with CF or a family member -- parent, partner, or spouse -- who has experience with the topics you want to learn more about.

You can request a peer mentor to talk about topics that are important to you, including:

Going to college
Making work/career decisions
Dating, relationships, and marriage
Adjusting to your child’s new diagnosis
Finding balance as a caregiver
Starting a family
Parenting
Getting diagnosed as a teen or adult
Considering lung transplant
Coping with bereavement

LEARN MORE

REQUEST A PEER MENTOR

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CF Foundation: COMPASS

9/6/2018

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TOPIC:
CF Foundation: COMPASS
A personalized service to help you with the insurance, financial, legal, and other issues you are facing. It's free, confidential and available to everyone.

LEARN MORE:
www.cff.org/Assistance-Services/About-Compass/What-Is-Compass

DATE:
Thursday, September 6, 2018

GUEST SPEAKERS:
Azi Kaider
CFF Compass Assistant Director, Policy and Advocacy

Aaron Stokes
Case Manager (Adult with CF)
CFF Compass

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Forward>>

All Things Cystic Fibrosis
Past Workshops & Posts by CF Parents

Scholarships, Grants & Other Benefits for People with CF

Resources:

Managing the Medication Madness

CF Programs and Patient Assistance

Understanding CFF Compass

CF Peer Connect

CF Foundation: COMPASS

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All Things Cystic FibrosisPast Workshops & Posts by CF Parents

Scholarships, Grants & Other Benefits for People with CF

Resources:

Managing the Medication Madness

CF Programs and Patient Assistance

Understanding CFF Compass

CF Peer Connect

CF Foundation: COMPASS

Categories

Archives

We Look Forward To Connecting With You

UPCOMING WORKSHOPSARCHIVED EVENTSABOUT USCONTACT USBLOG

All Things Cystic Fibrosis
Past Workshops & Posts by CF Parents

UPCOMING WORKSHOPS
ARCHIVED EVENTS
ABOUT US
CONTACT US
BLOG